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杰基的故事

I’m Jackie Hinckley. I’m 74 years old and my journey with cancer started in 2006. Today I’m living with Stage 4 Metastatic Breast Cancer.

photo of Jackie Hinckley at the beach

I was given 20 months to live, a grim diagnosis for sure. But that was 4 years ago. Today, the advanced treatment I am receiving in my clinical trial is saving my life… and the help I’m receiving from Lazarex allows me to stay in the clinical trial.

我这样做,是在我感觉不是最好的时候......我也负担不起住房、机票、uber的费用。每个月都是如此!我很节俭,所以我尽力把费用控制在最低水平;我坐红眼航班,住在MGH的补贴住房里,我找到最便宜的方式去吃饭....。但是,这些费用仍在不断增加,远远超出了我的能力范围。

Black & white photo of Jackie Hinckley with her daughters and grandson.

我已经参加了4个不同的临床试验。我还在这里真的是一个奇迹......而且我对与我的女儿和孙子们在一起的这段时间充满了感激。问题是:为了得到这种治疗,以便我能够留在这个世界上,我必须旅行。遥远的地方。我住在加利福尼亚的蒙特雷,试验是在波士顿的马萨诸塞州综合医院进行的。每月一次,我坐Uber到汽车站,坐两个半小时的汽车到旧金山,再坐红眼航班到波士顿。

在这场为我的生命而战的战斗中,我已经用尽了我的储蓄。我根本无力承担旅行费用--不,我没有得到制药公司的任何经济帮助,我自愿将我的身体用于他们的研究;在这次试验中没有,在我参与的其他任何试验中也没有。不要误会我的意思,我很感激有机会接受先进的治疗,这就是我今天站在你们面前的原因。然而,令我困惑的是,我几乎不得不退出这项试验,因为我付不起旅费。

这就是Lazarex癌症基金会的作用。他们为我报销了参加临床试验的旅费--他们让我继续接受这种拯救我生命的治疗。他们允许我参加一项研究,最终可能使其他像我一样的病人受益。毫无疑问,如果不是来自Lazarex的资金帮助,我就不会站在你们面前。这是一个生死攸关的问题--不仅仅是对我......而是对成千上万的癌症患者......他们中的许多人将永远没有机会,因为他们没有得到选择。

Jackie Hinckley addressing the audience at the National Press Club during our Disrupting the System event 6月 2019
2019年6月,在我们的 "颠覆系统 "活动中,杰姬在国家新闻俱乐部向观众致辞

I am here in DC to participate in the Lazarex roundtable (Disrupting the System II), then on my way to Boston for my next treatment…but it was important to me to stopover… to take part in this important event. I want to use my voice to spread the message about how patient reimbursements and engagement is key. A key to hope. a key to life. I cherish every moment with my grandkids and my daughters. And I get that opportunity because the help from Lazarex allows me to continue receiving treatment in my clinical trial.

更新:Jackie和Lazarex创始人Dana Dornsife接受了Fox 5的Good Day DC与Holly Morris的采访。 在此查看采访内容.

Update 5月 2020: Jackie got her wings in the spring of 2020.

“Yesterday we learned that Jackie Hinckley passed away. I will say she gave it her all and got many years to be with her family and grandkids. Heaven gains a feisty and beautiful soul. We were lucky to have her here while we did. What I keep learning is it is not that we die, but how we live knowing that we die. And how we live and how we face our death is the legacy we leave behind. So, blessings to who all who we love who have gone before us! You were comets, meteors, auroras across the open sky of our lives. Mission complete! We’ll take it from here and feel your love from the realms of the ancestors. Welcome home.”

Karen Ambrogi, Lazarex Cancer Foundation