Multiple myeloma patient Nora was stunned to receive a myeloma diagnosis after going in for knee pain. Watch as she shares her journey, her struggles with being heard as a BIPOC patient, and clinical trial support she received.
Nora was stunned to receive a multiple myeloma diagnosis after going in for knee pain. Watch as she shares her journey, her struggles with being heard as a BIPOC patient, and clinical trial support she received. In Nora’s words, “I was nervous about the trial because I had no knowledge of it. After starting the trial, I realized that my fear was not real. Goodness can come out of a clinical trial. ”And Nora is thankful for the clinical trial financial assistance from Lazarex Cancer Foundation, “Lazarex helped a lot, which was a big help. It gave me more strength to face the treatment and the emotional space to face the treatment without worrying about financial stress.”
I’ve always been an active person, but after knee pain became too much to manage, medical tests revealed I had multiple myeloma.
As a person of color, who often goes to appointments alone, I find it hard at times to articulate myself in a medical setting. In the past, I often felt dismissed and had to work extra hard to be heard. I wasn’t sure about what questions to ask about my myeloma, but I knew I had to find a specialist who could listen to my needs and limitations as we sought the best treatment options for me.
While still actively working, I decided to start treatment, all of which I did during my lunch breaks. No one knew I had cancer.
Many years later, numerous treatments started to have little impact, so I opted for a stem cell transplant, but then I relapsed. My options were becoming limited. My specialist then suggested a clinical trial. I was nervous about the trial simply because I had no knowledge of it.
I agreed and started a twice-weekly regimen requiring expensive travel arrangements. The costs to travel for treatments were a barrier.
My clinical trial coordinator introduced me to Lazarex Cancer Foundation which granted me funds for travel to get treatments. The grants helped me tremendously. Without financial stress to deal with, I had more strength and emotional space to face all my treatments, and to be more articulate.
I am so grateful for Lazarex supporting patients like me as we seek clinical treatments to extend our lives.